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End-of-Life Care Resources
End-of-Life Nursing Education Consortium (ELNEC) Project
The End-of-Life Nursing Education Consortium (ELNEC) project is a comprehensive, national education program to improve end-of-life care by nurses, and is funded by a major grant from The Robert Wood Johnson Foundation. Primary project goals are to develop a core of expert nursing educators and to coordinate national nursing education efforts in end-of-life care.
This 3-year project began in February 2000, and is a partnership of the American Association of Colleges of Nursing (AACN) and the Los Angeles-based City of Hope National Medical Center (COH).
ELNEC actually is a consortium of many organizations that are represented on the ELNEC Advisory Board. This diverse group insures that the ELNEC project brings together leading nursing groups and perspectives to form a collaborative approach to improve end-of-life education and care.
City of Hope Pain Resource Center Nursing Research and Education
http://prc.coh.org
Note: While visiting City of Hope Pain Resource Site
Click Other Materials in the left navigation bar, then Click on Resource Lists
to access this continuously updated information on the following:
Individual Program Resources
Program I
Poor and Underserved Populations
http://www.nih.gov/ninr/i_publications.html
The Health Resources and Services Administration
http://www.hrsa.gov
has a series of Special Projects of National Significance (SPNS)
http://hab.hrsa.gov/SPNS/SPNSAbstracts/SPNS-Palliative.htm
including populations with HIV/AIDS: Asian and Pacific Islanders, Children, Homeless Men and Women, Migrant Workers, Native Americans, Rural Populations
http://www3.oup.co.uk/jurban/hdb/Volume_77/Issue_02/
The Journal of Urban Health Bulletin of the New York Academy of Medicine
www.growthhouse.org
Award-winning site on End-of-Life issues, with information on underserved populations
Program II
www.palliativecarenursing.net
www.hpna.org
Hospice and Palliative Nurses Association
http://www.abhpm.org/
American Board of Hospice and Palliative Medicine
Program III
Marianne Matzo: Reference
Mitty, E.L. (2001), Ethnicity and EOL Decision Making. Reflections on Nursing Leadership, 27(1), 29-31
http://www.endoflifecare.org/navigate/frameset1.html
Promoting Excellence in End-of-Life Care
A National Program Office of
The Robert Wood Johnson Foundation
Beliefnet : discussion of end-of-life care, offering regularly updated assortment of articles, columns, and essays on end-of-life issues, plus message boards
Program IV
Last Acts: a national coalition to improve care at the end of life
http://www.lastacts.org/
Death in America: Project on death dying and bereavement
www.soros.org - Click on U.S. Programs
Partnership for Caring: America's voices for the dying: information on advance directives
www.partnershipforcaring.org
Dying Well
www.dyingwell.com
www.ethicalwill.com
Ethical Wills: Preserving Your Legacy of Values
http://www.aapa.org/gandp/eol.html
End of Life Decision Making
Program V
Death, Dying and Bereavement:
http://www.icfs.org/bluebook/si000006.htm
Program VI
http://www.healthteam.msu.edu/fcrp/patients.htm
http://www.ihpnet.org/4health.html
Interfaith Health Practices Homepage
http://www.nahc.org/
National Association for Home Care
http://www.nfcacares.org/
National Family Caregivers Association
www.americanhospice.org
American Hospice Foundation: The foundation advances the hospice concept of care and promotes hospices that seek to meet growing and complex needs.
www.caregiving.com: resources and support for family caregivers.
http://www.hospicenet.org/
Hospice Net: information for patients and families facing life-threatening illness.
www.hospicefoundation.org
Hospice Foundation of America
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